It's been awhile since I've had the chance to update. Sorry about that! Well, just to quickly let you know what's been going on---Isaiah started cruising furniture around 15 months and then took off walking after he received his foot braces in July. He's been running ever since, at least trying to! He loves chasing his older brother and torturing him. He is a very busy little boy with a bigger than life personality!
Unfortunately, Isaiah continues to refuse to eat and rarely drinks. He is on tube feeds 3 times a day. He also continues to throw up daily. Chris and I don't get much sleep and often end up with much more work than we would like. The doctors have no idea why he continues to throw up like this. He is already on medications for reflux. The current doctors suggest that we see go see an allergist as well as a GI motility specialist. We also have to decide soon whether or not we are going to take Isaiah to an intense feeding clinic to help retrain him to eat. We have 2 options, neither of which are easy or inexpensive. Please pray that we have the wisdom to pick the right program for Isaiah.
Right now, we have 3 pressing needs:
1) Our washer and dryer are struggling to keep up with the insane amount of laundry we have to do on a daily basis because of Isaiah's vomiting. Our dryer is rusting on the inside, causing rust stains on clothing. Then, our washing machine broke on Monday, but Chris thinks he will be able to fix it temporarily. However, we are in great need of a heavy duty clothes washer and dryer.
2) We need to figure out how to address Isaiah's eating issues. We don't know what to do and not sure which clinic to take him to. They both require alot of time, commitment, and money.
3) We need home care for Isaiah to be approved for 16 hours a week. I am going to a job fair on October 19 and hope to enter back into the nursing work force. Pray that I know how to coordinate Isaiah's schedule and what nursing job to accept. I need something that will be flexible and understanding with our situation. We would also love to put Josiah into preschool, but not sure how to do this at this time.
Please keep your eyes open for information regarding an upcoming fundraiser for Isaiah on Saturday, October 16, 2010. It will be held at Calvary of Souderton, room 218 off of Mr. B's, from 9am-1pm. Look forward to seeing you there.
Thank you for all your love and support. Please enjoy the video below. (You will need to go to the blog website to see the video) http://isaiahs-journey.blogspot.com
Tuesday, October 5, 2010
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A friend forwarded your blog to me because it mentions feeding. We went to an intensive feeding program in Hershey for a month, and it was a fantastic program. My daughter didn't have a G tube but she did have an NG tube for over a year. Hershey helped us wean her from it. Also, she pukes ALL THE TIME. I feel your pain!!!
ReplyDeleteGood luck with everything. Feel free to contact me if you have any questions about feeding or the feeding clinic in Hershey. My email address is in my profile and on my blog.