Just wanted to let you all know how Isaiah's last visit went at the Feeding Clinic at CHOP Main. Isaiah was seen by 5 specialists: a Nutritionist, Speech, OT, Nurse Practioner, and Dr. Cohen (a feeding doctor). This was the quickest appointment we have had yet, only 2 1/2 hours long. Chris's Aunt Anita went down with us, cause I though it would be a long day. Thankfully, it wasn't a long day, and I appreciated the company.
Right now, the specialists do NOT feel that Isaiah has any structural abnormalities, but rather just has a strong aversion to food. We have to spoon feed formula to Isaiah twice a day to try to get him used to taking in 'food' by mouth via a spoon. Also, his home OT (occupational therapist) works with him once a week as well. We will head back down to CHOP Main for a reevaluation on Oct. 21st. Hopefully, he will be improved and we can move onto actual food.
Isaiah has several appointments this month with CHOP doctors. Due to the 3 abnormalities in his brain, Isaiah will have his hearing and vision reevaluated on Oct. 7th. He needs to be rechecked to make sure everything is still functioning normally. On Oct. 14th, Isaiah will be seeing Dr. Boris, Cardiologist, to have the hole in his heart reevaluated. On the 21st, we head back to CHOP Main for feeding clinic. I am looking for someone to watch Josiah on the 14th. He would need to be picked up at my house around 9:30am, and then one of us will get him when we get home. Also, if someone would like to drive down with me on the 21st, I would appreciate it. I just want you to know that I will be visiting one or two of the other little babies we have been praying for on Oct. 21st.
We do have some sad news to share with everyone. One of the babies in Isaiah's pod down at CHOP's NICU, passed away on Sept. 21st. His name was Blake Carvalho. He was just a few days shy of his 7 month birthday. He fought long and hard, along with his parents, against his disease of autosomal recessive policystic kidney disease. Please be praying for his parents, Barbara Pereira and Bryan Carvalho. My heart just breaks for them. I know many of you prayed for Blake and his family. Thank you for that.
Thank you again for all your prayer and support. Remember to visit Mike Landis' blog site for his fund-raiser for Isaiah--http://mikelandisblog.com/?p=2937 . Mike's contact phone number is 267-328-7457 and his email address is firstname.lastname@example.org.
We love you all!