Monday, November 30, 2009

REFLECTIONS

As Veterans Day passed, I was thinking about how blessed we are as a country and as a family. If it weren't for the amazing men and women that sacrifice their time and lives, my son Isaiah may not be here today. If it weren't for them protecting our freedom and ability to advance in every area of life, Isaiah could not have had the life saving surgery he needed at 6 days old. I am so grateful to these beautiful people. They are true heroes. They are men and women I want my children to know and look up too. Some of the people we would like to recognize and thank are:
Chris's family: Uncle Rich Litzenberger--Army; Cousin Matt Novia--Marines
My Family: Great Grandpa Solt; Grandpa David Solt--Navy; Grandpa Douglas Emr--Navy; Great Uncle Paul Solt; Cousin Philip Solt; Cousin Dustin Donofry
Close Friends: Corey Nawrocki--Marine (just returned from 6th tour of duty on 11/27/09), Sam Kinch--Air Force, Amy Kinch
These are just a few of the men and women that we are forever grateful too. Hopefully we didn't miss anyone. We love you and thank you!

For Thanksgiving, we were able to get together with my dad's (Emr) side of the family. We were able to go around and say what we are thankful for. Chris and I both are very thankful for our boys, and especially for Isaiah's life. We were expecting maybe 2 months with Isaiah, and here we are 9 months later enjoying his crazy, stubborn, funny personality. Also, we have been so incredibly blessed by our friends, families, church family, and all the wonderful people we've met along the way. We are just so grateful for what we have been given.

Quick Update:
Isaiah had a weigh-in on Nov. 16th, and the dietitian was relatively happy with his weight gain. However, the biggest test will be on Dec. 10th, when the whole team reevaluates him. Hopefully, we will continue on this positive uphill climb and avoid the feeding tube.

On Dec. 15th, Isaiah will be having surgery on both of his ears. He has 40% hearing loss, and Dr. Germiller believes, that with tubes, Isaiah will be able to return back to a normal hearing range. He does have significant fluid buildup behind his eardrums, and we are hoping that that's all it is and that the hearing loss is not related to more structural abnormalities. Please pray for quick recovery and no complications since Christmas is right around the corner.

HUGE PRAISE: The baby, Christopher Michael (parents are Michael and Taneka Oldham), is doing well. Christopher did survive the pulmonary hypertension crisis, which the doctors at CHOP say is a miracle. He is still down at CHOP but is no longer critical. He is breathing on his own and is no longer on any meds, but is still on low dose of sedatives to help with his withdrawal from the high amount of morphine he needed to be on due to his condition. They are trying to get him to entirely eat from a bottle/nurse before he can come home and be off the sedatives completely. WOW what a journey he has taken and what plans God must have for him because even the best children's hospital in the country didn't predict for him to live, but as we know God is bigger than the best. Thank you to those who prayed.

Today is the last day for Isaiah's fundraiser. I found out from Mike, the photographer, that there are 2 ways to still participate in the fundraiser: 1) You can pay for a portrait session today, and schedule the appointment for the pictures for later in December. Mike is an on-site photographer. He will come to your home or any where else you would like to take your friend's/family's picture; OR, 2) you can do a direct donation to Mike Landis. He has all the information you would need, since this is his fundraiser. I'm not sure what all is involved. Again, Mike's contact information is as follows: Mike Landis's website, http://mikelandisblog.com/?p=2937, or contact him directly by phone 267-328-7457 or through his email address mike@mikelandisphotographer.com.

Thank you again for all your love and support.

Wednesday, November 4, 2009

MANY APPOINTMENTS, MANY UPDATES...

Just a warning, this will be a long update with alot of information. Isaiah had many appointments in October. We were at the doctors (CHOP) every week for various checkups. I will start with the praises, and end with our prayer requests.

PRAISES:

1. Thank you to those who prayed for Isaiah when he was really sick. It lasted for about 6 days (from 10/14-10/20). On the 20th, he finally woke up without a fever, but slept all day. He was a tired little dude!

2. Praise the Lord---the hole (PFO) in Isaiah's heart has officially closed! It was confirmed on Oct. 14th by Dr. Boris. Cardiology has signed off Isaiah's case. It is wonderful not to have to worry about the health of his little heart anymore.

3. Isaiah passed his eyesight test---he has a slight abnormality in the optic disks, but nothing that should affect his eyesight. We go back to see the ophthalmologist when he is 3-4 years old.

4. Another one of Isaiah's genetic tests, Zic 3, came back negative. We are still waiting on the results for Cystic Fibrosis and Fanconi's syndrome.

5. Angelina Coleman, one of the babies we have been praying for, is going back to Florida in about two weeks (after being up here for over 1 year). Her family leaves to go back on Nov. 12th. Pray as Angelina is medivaced to a local hospital in FL, and for her family as they learn to maintain her ventilator and trach. The family's hope is for her to eventually go home someday soon. Angelina still has to become stronger after her double lung transplant.

PRAYER REQUESTS:
1. Isaiah failed his hearing test. He is not hearing in the lower decibels. We go to see and ENT specialist, Dr. Germiller, on Nov. 16th at CHOP Main. Josiah will also be seeing the specialist for multiple ear infections to determine whether or not he needs tubes.

2. Isaiah also failed to put on enough weight for the CHOP swallowing/feeding team. There is a very large discrepancy between his length and weight. He is below the 5th percentile. They feel he has mild wasting (loss of muscle tissue), and if he doesn't eat approximately 30 ounces a day, he may end up with a feeding tube. They feel he is not taking in enough nutrients to sustain new muscle and tissue growth. Isaiah is improving with eating baby food, about a jar a day, but that is still not enough to gain weight. Please pray that he miraculously gains weight by the next visit(December10th). Another issue could be his reflux is worsening and that is why he is not eating well. The team will be addressing that as well on Dec. 10th. Also, pray for me as it's hard to constantly fight over every meal and bottle. It would be nice for Isaiah just to eat nicely without a struggle.

3. Please pray for a family who just had their first baby last Friday, and the baby was diagnosed with Pulmonary Hypertension after he was born up at Lehigh Valley Hospital. The baby was treated with a catheterization and placed on a ventilator. This was supposed to be the treatment that would help him recover and become stronger within a few days. The baby a couple day ago took a drastic negative turn and they flew him down to CHOP b/c Lehigh couldn't stabilize him. As they were getting ready to load him onto the chopper he coded (Cardiac Arrest). They were able to revive him, but it is touch and go. The baby's name is Christopher Michael, and the parents are Michael and Taneka Oldham.

PLEASE lift this baby and family up in prayer and for healing and super grace for them at this time! They had no idea at birth that any of this would lay before them. Taneka hasn't even held him yet!!!! I will update you as I know more.

UPCOMING EVENTS:
1. Isaiah's next surgery is scheduled for April. It will be pretty extensive as they create a thumb out of the index finger on his right hand. He will be casted and splinted for 6 weeks, and then have extensive therapy. It'll be a long recovery.

2. SAVE THE DATE!!!!!!!!! February 20, 2010 (Saturday)--It will be Isaiah's 1st birthday! Everyone, and we mean EVERYONE, is invited to share in this joyous occasion! Isaiah is here because of everyone's prayers. We want everyone to come and meet Isaiah and we would like to meet those we haven't met yet. We will share more info as the date becomes closer---We do know the birthday party will be held at Bethel Baptist Church, in the Timothy Center. Please Come!!!!

3. REMEMBER THE FUNDRAISER FOR ISAIAH!!!!!!!!! If you meant to participate and haven't yet, here is a friendly reminder. It ends November 30th. Please check out Mike Landis' website for the information, http://mikelandisblog.com/?p=2937, or contact him directly by phone 267-328-7457 or through his email address mike@mikelandisphotographer.com. Thank you.

4. Chris and I are looking for several individuals to help us out through the fall/winter months. We would like to have help with the boys on Sunday mornings and Wednesday nights so Chris and I can go to church occasionally together. Both Josiah and Isaiah keep getting really sick every time we go out in public. We are desperately trying to keep them healthy. A couple of our wonderful neighbors have been helping us right now, but we don't want to tire them out!)

Thank you all for continuing to uplift us in prayer, for the encouraging letter and emails, and for the financial help. We seriously could not get through all of this with Isaiah without your support and love. It is so true what the Bible says about family/friends, "Two are better than one; because they have a good return for their work: If one falls down, his friend can help him up. But pity the man who falls and has no one to help him up! Though one may be overpowered, two can defend themselves. A cord of three strands is not quickly broken." Ecclesiates 4:9,10,12 Thank you for being our 'friends'! We love you!