Isaiah is having trouble with his G-tube site. He now has an ulcerated area around the surgical site. This is causing him additional pain. Every time we hook up his feeds (which is 3 times a day) it rubs against the open area. It's really hard to allow the area rest, and to keep it dry and clean when we have to use it daily. We now have to travel down to CHOP on a weekly basis to see his general surgeon, Dr. Collins. This is adding a lot of additional stress to all of us. Please pray that this sore heals and that it won't become worse.
Isaiah is also still having a lot of trouble eating and drinking. He's at the point he doesn't even want to try. Dr. Collins seems to think that after a couple of weeks, he'll want to try eating again. He continues to throw up every night, and we are dealing with constipation and bloating. Chris and I are tired, and I'm sorry this note doesn't contain good news. This is just our reality right now.
We need an extra dose of grace and energy right now from God. We know what God promises in His Word, but we really need to believe it and rely on it. Pray that not only will Isaiah quickly be healed, but that we will make these following verses our own: "Three times I pleaded with the Lord to take this away from me. But He said to me, My grace is sufficient for you, for my power is made perfect in weakness. Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong," 2 Corinthians 12:8-10. Thank you.