Tuesday, April 21, 2009

2 Months, 8 Days, and Counting.....YAHOOOOOO!

How excited we are that Isaiah made it to his 2 month birthday, and then some! God sure is good, "and His mercies endure forever," I Chronicles 16:34. Isaiah is doing well, except for reflux. He's now on Zantac three times a day to help with the reflux, which is very painful for him. We need alot of prayer in this area. He sometimes cries alot, and it can be really trying. I spend a good part of the day holding him while he cries. By the time Chris gets home, I am exhausted. I try to keep reminding myself that it all could be worse, and that this too shall pass. The hardest part of all of this is that Isaiah gets himself so worked up from the pain that he has been refusing to nurse. Most of you know how much I love nursing, so this has been extremely difficult on me. I often have to make a bottle to get him to eat anything.

This past Wed., April 15th, we were at CHOP for a visit with Dr. Haber, a GI specialist that specializes in biliary atresia (liver problem related to the missing gallbladder). She was very happy with the way Isaiah looks and said if he does not develop any symptoms in the next 2 weeks, he will probably never develop biliary atresia. Praise the Lord for that! Only 1 more week, and he's in the clear. I was also able to deliver the 5 thank you baskets to everyone that helped us out at CHOP and the PRMH, thanks to the help of our wonderful friend Stacy.

On Fri., April 24th, we were back down at CHOP to see Isaiah's cardiologist, urologist, ortho/plastics doctor, and have an echocardiogram done. He now weighs 9 lbs. 2 oz. and is 22 1/2 inches long. All of the doctors were happy with Isaiah's progress. The cardiologist will see him again at 8 months of age to continue monitoring the hole in his heart (the patent foramen ovale/PFO). The doctor is not concerned with Isaiah's heart, and feels the PFO will eventually close on its own. The urologist will still have to perform surgery to bring down his testes, but otherwise everything is functioning ok. The ortho/plastics doctor was very happy with the progress of his left arm. He was actually surprised how effective the splinting was working. We will continue splinting his left arm until surgery at 6 months. The urologist and plastics doctors will coordinate surgeries to cut down on how many times Isaiah has to undergo anesthesia. At 1 year of age, Isaiah's right hand will be operated on. Hopefully, that will be the extent of his surgeries. Thanks to my wonderful friend Rochelle S. for keeping me company on a very busy day.

We continue to be amazed by the outpouring of generosity from our friends, family, neighbors and church family. We could not go through this without all of you behind us. Ecclesiastes 4:9-12, "Two are better than one...for if they fall, the other will pick him up." Many times it was your faith and trust in God that gave us the strength to go on. God gave us our miracle son because of many of you. Thank you from the bottom of our hearts.

By the way, you are all welcome to call, email, or visit our little miracle man. We are still requesting that if you are sick or if someone in your home is sick to hold off until you are all better. Also, we are still not accepting stuffed animals because of all the dust and microbes they carry. Sorry about the delay in inviting you to come. It's just been a little crazy around here. We look forward to having you meet our amazing little boy. Thanks for your patience! God bless!

1 comment:

  1. thanks so much for the updates on isaiah. it is great to hear how he is growing and conquering some of the challenges in his little life. i have never met your family but know that your family is in my thoughts and prayers!