Saturday, April 4, 2009

We're back online...

Sorry for not getting out an update sooner. Our power cord to our laptop died and the new one just came in the mail. Chris has been extremely busy at work and he didn't have the chance to send one out from there either.

FYI...If you recieved an ealier email stating "Eeyore is cute..." we were not the ones that sent that out. That email had a number in the subject instead of a title. Our updates will always have a title. This is one thing you can look out for when reading our updates. Please do not reply to those emails. Sorry about this. We're not entirely sure how this happened yet or if it will happen again.

So where to begin....

On Wednesday, Isaiah went to his local pediatrician. He now weighs 8 lbs. and is 21 inches long. He's gaining weight very well and the doctor said we don't have to go back until his 2 month checkup. It's only 2 weeks away but at least we get a 1 week break from this office visit.

On Thursday, Joy went down to CHOP by herself to see Dr. Joy Collins, general surgeon. She was the doctor who performed Isaiah's intestinal bypass. She was so pleased with his progress that she signed off on his case (1 doctor down, 6 to go). After this visit, Joy had to go to the CHOP office in Chalfont so that Isaiah could have his splint adjusted for his left arm. Surgery for either arm is not yet scheuled, and probably won't be till at least 6 months to a year from now.

Isaiah's next appointment is April 15th for a visit with the GI doctor, Dr. Haber. She is following him to make sure he does not develop biliary atresia. Then, on the 24th, Isaiah sees his cardiologist, urologist, ortho/plastics, and will have an echocardiogram done. Joy is looking for someone to accompany her on both of these visits. On the 15th, she has 3 thank you baskets to deliver and needs help carrying them.

When all of this started and we thought Isaiah had Trisomy 18, we were only hoping for 2 months with him. Well, God has been good and not only gave us the health of our precious miracle, but He has been giving us more than 2 months with Isaiah. ("Isaiah 58:8 Then your light will break forth like the dawn, and your healing will quickly appear; then your righteousness will go before you, and the glory of the LORD will be your rear guard.") We could not be more grateful. Every day is a gift. We all love being with him. Every day Josiah asks to hold Isaiah and loves to give kisses to him or play with his hair. It is wonderful to watch. We look forward to the day when the 2 of them are running around and playing together.

We want to continue to thank you all for your continued support and prayers. We honestly do not know where we'd be if we didn't have God in our lives. We remember talking with some families at the Ronald McDonald house and to hear their stories and know that they didn't know God and have that personal relationship with Him was saddening. We ask that you also continue to pray for the children we listed on one of the previous blog entries. We know that two of them, Tehila and MacKynlee, have left the hospital and are now home with their parents.

Here is a small video of Josiah playing with Isaiah. Enjoy.
video

6 comments:

  1. This video is soooo precious! I am so happy for all of you! God is awesome! I love you all! XOXOXO

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  2. So thankful for how God has chosen to work out His plans for you and Isaiah this far. He is so faithful. The video is great! Thanks for posting.
    Angie (Stephens) Nelson

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  3. So happy that God is working such a miracle in little Isaiah's life! What a precious video! Thanks so much for all the updates! It's wonderful to hear how you all are doing and what to be praying for!

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  4. Priceless!! May God continue to heal Isaiah and bless your beautiful family.

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  5. Thank you for the update, and the video is precious! We continue to rejoice with you in the Lord's work in Isaiah and the great doctor reports; we'll keep praying! (Joy, it was wonderful to see you at the Mothers Mart!)

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  6. As tears roll down my cheek, I cannot help but praise the Lord for such a beautiful experience for your family and all of us to witness! Thanks for sharing that beautiful, precious interaction that will be treasured forever!
    The Cowens

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