Yesterday, Isaiah was stable enough to have his breathing tube removed as well his arterial line that monitored his blood pressure continuously. Even though he is breathing on his own, a big praise, we are unfortunately dealing with him having uncontrolled pain. He hasn't slept well in several days and has been unbelievably uncomfortable and often cries out in pain, even in the middle of his sleep. It's been excruciating watching him be in pain and not be able to do anything about it. We have been fighting with the doctors to achieve proper pain control. They have been very slow in upping the strength of the narcotics because they are afraid of slowing his respiratory system. But, we continue on and hope today is the day they figure out the perfect combination of pain meds.
Just continue to pray for healing for his little body. He just lays there, unsmiling, not moving, not talking. It's heartbreaking.