Hello Our Dear Friends,
I know it’s been awhile since we updated everyone. We’ve been quite busy, and I often don’t have time to sit quietly, think and type. So here’s June and July’s update on Isaiah and his schedule for August.
Isaiah has been doing really well. He is now 12 lbs. 12 oz. and is 25.5 inches long. He is very interactive, smiling all the time, and there is rarely a moment he is quiet---he likes to talk A LOT!!!! If he cannot see someone, he makes sure he is noisy enough for someone to come talk to him.
On June 1st, we were down at CHOP to see Isaiah’s neurologist, Dr. Szperka. She was thrilled with the progress Isaiah has been making. He is meeting all his milestones, and she signed off of his case. We were so excited to cross one more doctor off of our list. Unfortunately, we hit a small road block later on in June. Isaiah went for his 4 month check-up with Dr. Ahuja, and he found that Isaiah’s soft spots (fontanels) were full, not flat, and the back one is still open. The front soft spot can be open until age 2, but the back one is to be closed around 4-6 months. We had blood work done that came back normal, no thyroid issues that could be affecting the closing of the soft spots. However, we need to head back to the neurologist for closer monitoring of the fluid on the brain. Please continue to pray that the extra fluid Isaiah has does not increase and put pressure on his brain. I’ll let you know when we have a date to head back to neurology.
On June 25th, we saw Dr. Chang, the ortho/plastics doctor. He is happy with Isaiah’s left hand progress. We initially were going to have Dr. Chang operate on his hand to straighten it, but if he did that, Isaiah would lose function and mobility in his wrist. Right now, Isaiah uses the wrist like an elbow, because he can’t bend his elbow more than 30 degrees. He will still have surgery to make a thumb on his right hand when he is a year old.
In July, Isaiah started with physical therapy on a weekly basis. This was added to the occupational therapy that he has already been doing. This makes for busy days. His strength and purposeful movements have been improving. He is even getting his left (bad) hand to his mouth with the help of his right (good) hand.
On August 28th, Isaiah will have surgery down at CHOP to correct his urological issues. Dr. Zderick will be his surgeon. We have to go down on the 14th for all his pre-op blood-work and meet with anesthesia. I know they want his surgery to be done as an out-patient, but we would like Isaiah to stay overnight. In the past, when Isaiah had to be put under, or had any sedation, he would later drop his heart rate and oxygenation saturation. Usually this happened hours after a procedure. I just don’t want the doctors to discharge him too early and then we have a problem later on. Chris and I will hopefully be staying down at the Ronald McDonald House and Josiah will be with the Bergeys from our church.
We had a great opportunity to share our story/testimony with the students at my old high school, Upper Bucks Christian School. Many of the students there had been praying for Isaiah and for us. What a privilege it was for us to stand before them with a present day miracle that they had had a part in. It was a blessing to show them that God still performs miracles today, and Isaiah is it.
We have a few prayer requests that we would really appreciate your faithful prayers for:
1. Isaiah’s surgery on August 28th. Pray for safety as we travel back and forth to Philly, for Isaiah to make it through without any complications, for wisdom for the doctors, and for Josiah since he’s away from us again.
2. For me—I am still struggling with some issues. I don’t want to go into great detail, but I have good days and bad days. I want to have complete faith in God, but often I don’t.
3. We have several unspokens. Pray that God provides our needs as He sees fit, and that we will be satisfied with His decision.
4. That Chris’s job remains solid and safe. They have down-sized twice this year already.
5. For my cousin, Joshua Solt. He was in a critical accident approximately 2 weeks ago. He was driving a motorcycle with his girlfriend when an unlicensed 17-year-old boy pulled out in front of them. You can read his updates at http://www.caringbridge.org/visit/joshuasolt. He is currently at a rehab center in Bethlehem. He has a trach to help him breathe, and he is awake and alert. Pray for his family as well, and for his girlfriend, Vicky, that she makes a complete recovery.
Thank you again for all your words of encouragement and for checking in on us periodically. We cannot thank you enough.
Monday, August 3, 2009
Tuesday, June 2, 2009
SO MANY PRAISES, SO MANY THANKS...
Hello Friends,
It has been a while since we updated the blog. So much has happened since we wrote you last. I will start with the dedication on Mother's Day.
What a blessing it was to have Isaiah dedicated back to God. This was something we never thought we would have a chance to do. God sure is good! He was very cute in his little plaid pants and golfers cap with a navy blue vest. He only cried a little. It was the first time Pastor Campbell was able to hold him. Pastor read the passage from the Bible that he read to us the day we were told our little baby had Trisomy 18, Isaiah 43:1-3, "Fear not, for I have redeemed thee, I have called thee by thy name; thou are mine. When thou passest through the waters, I will be with thee; and through the rivers, they shall not overflow thee; when thou walkest through the fire, thou shalt not be burned; neither shall the flame kindle upon thee. For I am the LORD thy God, the Holy One of Israel, thy Savior." I started to tear up just remembering where we came from to where we are today, from death to life! Isaiah is truly a miracle! He is here today because of the faithfulness of God's people praying for his healing. Isaiah is here today because God intervened on yours and our behalf!
Thank you to all the friends and family that were able to attend. We enjoyed sharing such a special occasion with you. A special thanks to my mom who travelled up from Tennessee and to my brother Doug who travelled in from Boston to attend the service. It was nice having my whole family together. Isaiah was blessed to have 2 sets of GREAT-grandparents attend also, one from each side, the Millers and the Solts. What a great legacy he has. We also had aunts, uncles, cousins, and grandparents from all over PA and from NJ come to our home to celebrate Isaiah's life. We all had a great time.
The day before the dedication was the Mother's Market and bake sale. The amazing women from Moms & Tots put on a great event. Their goal was to raise money for Isaiah to help with medical expenses and travel costs. I was praying for a specific amount. Wouldn't you know it that God answered my request, plus some. The amount they raised helped to cover 2 medical bills. I was only praying to cover 1 bill. Again, God is just so good to us. Thank you to EVERYONE who participated in the bake sale and market. We cannot even begin to express just how much you all mean to us. We know that there were some people who bought items just to support Isaiah, and didn't even know who he was or who we are. Thank you to you as well. I was able to take Isaiah to the Mother's Market so people could meet him in person. We had fun, and I had fun shopping!)
Isaiah is now receiving therapy at home once a week besides the weekly session of therapy at CHOP's satellite office in Chalfont. He is exercised and stretched. He is not too fond of all the stretching. Through therapy, Isaiah was discovered to also have torticollis, which is a condition in which the head is tilted toward one side, and the chin is elevated and turned toward the opposite side. He always turns to the right. To correct the problem takes allot of diligence on our end. Both Chris and I have to make sure he is being stretched multiple times throughout the day. He is getting better, but still has a ways to go.
A huge praise is that Isaiah is now off of the Apnea monitor! No more alarms during the night! Every clinical read from the monitor was negative for episodes--he did not stop breathing or drop his heart rate below 80 bpm. It was a little scary getting rid of the monitor, but at the same time a great relief!
Another great answer to prayer is that Angelina, one of the little babies from CHOP, received her lung transplants and is doing well. You can read her story at www.caringbridge.org/visit/angelinacolman. Also, her parents are still having a fund raiser for her in which you can purchase t-shirts. I was told they are now available (earlier when I had posted this, the t-shirts weren't ready). Keep praying for her for complete healing so she can go home with her parents and big sister. The following is the info about the t-shirts:
ANGELINA LOUISE LUNG TRANSPLANT FUNDRAISER T-SHIRTS NOW AVAILABLE...
IF YOU HAVEN'T ALREADY PURCHASED A SHIRT,
PLEASE VISIT THE LINK BELOW AND/OR EMAIL IT TO A FRIEND OR COLLEAGUE.
http://www.angelflywear.mybisi.com/
**ORDER 3 OR MORE SHIRTS NOW THRU MAY 31ST AND RECEIVE FREE SHIPPING...REFER TO CODE FREESHIP UPON CHECKOUT.
THANK YOU, THE ANGELFLYWEAR TEAM
A couple of the other babies have also gone home and are doing well. They are Jordan, Tehila, Liya, James and Jack. Two that continue to need special intervention from God are Blake and Jaylisse. I know all their parents would appreciate continued prayer for complete healing for all of them.
We head back down to CHOP on June 1st to see Isaiah's neurologist. As of right now, Isaiah seems to be developing without any mental complications. He is reaching his developmental milestones, and has not shown any signs of delays. Hopefully, they will have continued good news. On June 24th, we see Dr. Chang again (ortho/plastics specialist) to determine what surgery Isaiah exactly needs. Surgery on his left arm is tentatively scheduled for August, along with his urologic surgery. Surgery on his right hand will not take place until he is a year old.
We love all of you so much and cannot thank you enough for standing by us through all of this. Many times you have been our strength when we felt we could not go on. Many of you met needs we had without even asking. We are truly blessed to be in the presence of a miraculous God who takes care of His children!
Thank you and God bless--"I thank my God upon every remembrance of you," Philippians 1:4
It has been a while since we updated the blog. So much has happened since we wrote you last. I will start with the dedication on Mother's Day.
What a blessing it was to have Isaiah dedicated back to God. This was something we never thought we would have a chance to do. God sure is good! He was very cute in his little plaid pants and golfers cap with a navy blue vest. He only cried a little. It was the first time Pastor Campbell was able to hold him. Pastor read the passage from the Bible that he read to us the day we were told our little baby had Trisomy 18, Isaiah 43:1-3, "Fear not, for I have redeemed thee, I have called thee by thy name; thou are mine. When thou passest through the waters, I will be with thee; and through the rivers, they shall not overflow thee; when thou walkest through the fire, thou shalt not be burned; neither shall the flame kindle upon thee. For I am the LORD thy God, the Holy One of Israel, thy Savior." I started to tear up just remembering where we came from to where we are today, from death to life! Isaiah is truly a miracle! He is here today because of the faithfulness of God's people praying for his healing. Isaiah is here today because God intervened on yours and our behalf!
Thank you to all the friends and family that were able to attend. We enjoyed sharing such a special occasion with you. A special thanks to my mom who travelled up from Tennessee and to my brother Doug who travelled in from Boston to attend the service. It was nice having my whole family together. Isaiah was blessed to have 2 sets of GREAT-grandparents attend also, one from each side, the Millers and the Solts. What a great legacy he has. We also had aunts, uncles, cousins, and grandparents from all over PA and from NJ come to our home to celebrate Isaiah's life. We all had a great time.
The day before the dedication was the Mother's Market and bake sale. The amazing women from Moms & Tots put on a great event. Their goal was to raise money for Isaiah to help with medical expenses and travel costs. I was praying for a specific amount. Wouldn't you know it that God answered my request, plus some. The amount they raised helped to cover 2 medical bills. I was only praying to cover 1 bill. Again, God is just so good to us. Thank you to EVERYONE who participated in the bake sale and market. We cannot even begin to express just how much you all mean to us. We know that there were some people who bought items just to support Isaiah, and didn't even know who he was or who we are. Thank you to you as well. I was able to take Isaiah to the Mother's Market so people could meet him in person. We had fun, and I had fun shopping!)
Isaiah is now receiving therapy at home once a week besides the weekly session of therapy at CHOP's satellite office in Chalfont. He is exercised and stretched. He is not too fond of all the stretching. Through therapy, Isaiah was discovered to also have torticollis, which is a condition in which the head is tilted toward one side, and the chin is elevated and turned toward the opposite side. He always turns to the right. To correct the problem takes allot of diligence on our end. Both Chris and I have to make sure he is being stretched multiple times throughout the day. He is getting better, but still has a ways to go.
A huge praise is that Isaiah is now off of the Apnea monitor! No more alarms during the night! Every clinical read from the monitor was negative for episodes--he did not stop breathing or drop his heart rate below 80 bpm. It was a little scary getting rid of the monitor, but at the same time a great relief!
Another great answer to prayer is that Angelina, one of the little babies from CHOP, received her lung transplants and is doing well. You can read her story at www.caringbridge.org/visit/angelinacolman. Also, her parents are still having a fund raiser for her in which you can purchase t-shirts. I was told they are now available (earlier when I had posted this, the t-shirts weren't ready). Keep praying for her for complete healing so she can go home with her parents and big sister. The following is the info about the t-shirts:
ANGELINA LOUISE LUNG TRANSPLANT FUNDRAISER T-SHIRTS NOW AVAILABLE...
IF YOU HAVEN'T ALREADY PURCHASED A SHIRT,
PLEASE VISIT THE LINK BELOW AND/OR EMAIL IT TO A FRIEND OR COLLEAGUE.
http://www.angelflywear.mybisi.com/
**ORDER 3 OR MORE SHIRTS NOW THRU MAY 31ST AND RECEIVE FREE SHIPPING...REFER TO CODE FREESHIP UPON CHECKOUT.
THANK YOU, THE ANGELFLYWEAR TEAM
A couple of the other babies have also gone home and are doing well. They are Jordan, Tehila, Liya, James and Jack. Two that continue to need special intervention from God are Blake and Jaylisse. I know all their parents would appreciate continued prayer for complete healing for all of them.
We head back down to CHOP on June 1st to see Isaiah's neurologist. As of right now, Isaiah seems to be developing without any mental complications. He is reaching his developmental milestones, and has not shown any signs of delays. Hopefully, they will have continued good news. On June 24th, we see Dr. Chang again (ortho/plastics specialist) to determine what surgery Isaiah exactly needs. Surgery on his left arm is tentatively scheduled for August, along with his urologic surgery. Surgery on his right hand will not take place until he is a year old.
We love all of you so much and cannot thank you enough for standing by us through all of this. Many times you have been our strength when we felt we could not go on. Many of you met needs we had without even asking. We are truly blessed to be in the presence of a miraculous God who takes care of His children!
Thank you and God bless--"I thank my God upon every remembrance of you," Philippians 1:4
Saturday, May 9, 2009
ISAIAH'S DEDICATION---SUNDAY, MAY 10th
Just a quick reminder to everyone, Isaiah is being dedicated on Mother's Day, Sunday, May 10th, at 10:30am, and we would love for all our prayer supporters/friends to come to this special occasion. We are so excited for this day. We have thoroughly enjoyed meeting different people along the way that have been reading our blog and praying for Isaiah and for us. This has been an amazing journey and we look forward to what the Lord has in the future for our little miracle. Please come, we would love to meet you and for you all to meet Isaiah. The service is at Bethel Baptist Church, 754 East Rockhill Rd., Sellersville, PA 18960; tel. 215-536-9200. Happy Mother's Day to all you wonderful mothers out there!
Saturday, May 2, 2009
SAVE THE DATES...
Hello Everyone!
Just a quick note to let you know of a few important events that are going on in our lives. We want to invite you to participate in all of them if you are able. Please mark your calendars!
1. May 9th, Saturday, from 10am-2pm---Our church, Bethel Baptist Church, is putting on a Mother's Market, New 2 You, for the community. All proceeds from the bake/hotdog sales are going to Isaiah to help cover hospital costs and travel expenses. We cannot thank our church enough for standing with us through everything. Bethel's address is 754 East Rockhill Rd., Sellersville, PA 18960 and their phone number is 215-536-9200. Hope you can make it!!!!
2. May 10th, Sunday, at 10:30am---Isaiah's Dedication! We want to invite everyone to this joyous occasion! We are so excited for this day, a day we thought would never come. You all played a part in Isaiah's recovery because of your prayers and faith, and because of that we want you all to be there if possible and meet our little miracle man. It will be held at Bethel Baptist Church, 754 East Rockhill Rd., Sellersville, PA 18960 (215-536-9200).
3. June 1st, Monday---Deadline for ordering T-shirts for a special baby at CHOP, Angelina. We had the honor of getting to know her parents and big sister at the Philadelphia Ronald McDonald House (PRMH). Their family could really use your support. Please consider ordering T-shirts to help them out. Angelina is approximately 8 months old and has been in the hospital since before Thanksgiving of last year (2008). She was born prematurely and is in need of a lung transplant. Her whole family moved up here from Florida to help take care of her and to be close to her at the world's best children's hospital. The following is the information they sent us:
T-SHIRTS IN HONOR OF ANGELINA LOUISE. It is fundraising time for the “Angel”ina Louise Medical Fund. Attached is the layout for the front left chest/back of the white t-shirts that will be completed within the next four (4) weeks. A few of you mentioned that you would be interested in selling some of “Angel”ina’s t-shirts for us so you and/or your friends won’t accrue additional shipping charges ordering through our website …Thank you!
If still interested, please email your address with breakdown of t-shirt sizes (s thru xl) to
angelflywear@gmail.com no later than Monday, April 27, 2009.
Otherwise, if you would like to individually place an order for this t-shirt and/or you have a friend or family member that would like to order a t-shirt then please check out www.angelflywear.mybisi.com no later than June 1st.
COST: $18.00 each
(The minimum bulk order is 30+ pcs. Payment for all bulk orders can be made after the t-shirts are sold) Thank you in advance…It is greatly appreciated!
The Colman Family
www.caringbridge.org/visit/angelinacolman
4. Photos---Check out our friend's website, photographer Doug Burns. He took some beautiful pictures of our little miracle. Hope you enjoy them! http://www.candidmomentsphotography.com/blog/
Have a wonderful weekend and Happy Mother's Day to all you amazing moms out there!
Just a quick note to let you know of a few important events that are going on in our lives. We want to invite you to participate in all of them if you are able. Please mark your calendars!
1. May 9th, Saturday, from 10am-2pm---Our church, Bethel Baptist Church, is putting on a Mother's Market, New 2 You, for the community. All proceeds from the bake/hotdog sales are going to Isaiah to help cover hospital costs and travel expenses. We cannot thank our church enough for standing with us through everything. Bethel's address is 754 East Rockhill Rd., Sellersville, PA 18960 and their phone number is 215-536-9200. Hope you can make it!!!!
2. May 10th, Sunday, at 10:30am---Isaiah's Dedication! We want to invite everyone to this joyous occasion! We are so excited for this day, a day we thought would never come. You all played a part in Isaiah's recovery because of your prayers and faith, and because of that we want you all to be there if possible and meet our little miracle man. It will be held at Bethel Baptist Church, 754 East Rockhill Rd., Sellersville, PA 18960 (215-536-9200).
3. June 1st, Monday---Deadline for ordering T-shirts for a special baby at CHOP, Angelina. We had the honor of getting to know her parents and big sister at the Philadelphia Ronald McDonald House (PRMH). Their family could really use your support. Please consider ordering T-shirts to help them out. Angelina is approximately 8 months old and has been in the hospital since before Thanksgiving of last year (2008). She was born prematurely and is in need of a lung transplant. Her whole family moved up here from Florida to help take care of her and to be close to her at the world's best children's hospital. The following is the information they sent us:
T-SHIRTS IN HONOR OF ANGELINA LOUISE. It is fundraising time for the “Angel”ina Louise Medical Fund. Attached is the layout for the front left chest/back of the white t-shirts that will be completed within the next four (4) weeks. A few of you mentioned that you would be interested in selling some of “Angel”ina’s t-shirts for us so you and/or your friends won’t accrue additional shipping charges ordering through our website …Thank you!
If still interested, please email your address with breakdown of t-shirt sizes (s thru xl) to
angelflywear@gmail.com no later than Monday, April 27, 2009.
Otherwise, if you would like to individually place an order for this t-shirt and/or you have a friend or family member that would like to order a t-shirt then please check out www.angelflywear.mybisi.com no later than June 1st.
COST: $18.00 each
(The minimum bulk order is 30+ pcs. Payment for all bulk orders can be made after the t-shirts are sold) Thank you in advance…It is greatly appreciated!
The Colman Family
www.caringbridge.org/visit/angelinacolman
4. Photos---Check out our friend's website, photographer Doug Burns. He took some beautiful pictures of our little miracle. Hope you enjoy them! http://www.candidmomentsphotography.com/blog/
Have a wonderful weekend and Happy Mother's Day to all you amazing moms out there!
Tuesday, April 21, 2009
2 Months, 8 Days, and Counting.....YAHOOOOOO!
How excited we are that Isaiah made it to his 2 month birthday, and then some! God sure is good, "and His mercies endure forever," I Chronicles 16:34. Isaiah is doing well, except for reflux. He's now on Zantac three times a day to help with the reflux, which is very painful for him. We need alot of prayer in this area. He sometimes cries alot, and it can be really trying. I spend a good part of the day holding him while he cries. By the time Chris gets home, I am exhausted. I try to keep reminding myself that it all could be worse, and that this too shall pass. The hardest part of all of this is that Isaiah gets himself so worked up from the pain that he has been refusing to nurse. Most of you know how much I love nursing, so this has been extremely difficult on me. I often have to make a bottle to get him to eat anything.
This past Wed., April 15th, we were at CHOP for a visit with Dr. Haber, a GI specialist that specializes in biliary atresia (liver problem related to the missing gallbladder). She was very happy with the way Isaiah looks and said if he does not develop any symptoms in the next 2 weeks, he will probably never develop biliary atresia. Praise the Lord for that! Only 1 more week, and he's in the clear. I was also able to deliver the 5 thank you baskets to everyone that helped us out at CHOP and the PRMH, thanks to the help of our wonderful friend Stacy.
On Fri., April 24th, we were back down at CHOP to see Isaiah's cardiologist, urologist, ortho/plastics doctor, and have an echocardiogram done. He now weighs 9 lbs. 2 oz. and is 22 1/2 inches long. All of the doctors were happy with Isaiah's progress. The cardiologist will see him again at 8 months of age to continue monitoring the hole in his heart (the patent foramen ovale/PFO). The doctor is not concerned with Isaiah's heart, and feels the PFO will eventually close on its own. The urologist will still have to perform surgery to bring down his testes, but otherwise everything is functioning ok. The ortho/plastics doctor was very happy with the progress of his left arm. He was actually surprised how effective the splinting was working. We will continue splinting his left arm until surgery at 6 months. The urologist and plastics doctors will coordinate surgeries to cut down on how many times Isaiah has to undergo anesthesia. At 1 year of age, Isaiah's right hand will be operated on. Hopefully, that will be the extent of his surgeries. Thanks to my wonderful friend Rochelle S. for keeping me company on a very busy day.
We continue to be amazed by the outpouring of generosity from our friends, family, neighbors and church family. We could not go through this without all of you behind us. Ecclesiastes 4:9-12, "Two are better than one...for if they fall, the other will pick him up." Many times it was your faith and trust in God that gave us the strength to go on. God gave us our miracle son because of many of you. Thank you from the bottom of our hearts.
By the way, you are all welcome to call, email, or visit our little miracle man. We are still requesting that if you are sick or if someone in your home is sick to hold off until you are all better. Also, we are still not accepting stuffed animals because of all the dust and microbes they carry. Sorry about the delay in inviting you to come. It's just been a little crazy around here. We look forward to having you meet our amazing little boy. Thanks for your patience! God bless!
This past Wed., April 15th, we were at CHOP for a visit with Dr. Haber, a GI specialist that specializes in biliary atresia (liver problem related to the missing gallbladder). She was very happy with the way Isaiah looks and said if he does not develop any symptoms in the next 2 weeks, he will probably never develop biliary atresia. Praise the Lord for that! Only 1 more week, and he's in the clear. I was also able to deliver the 5 thank you baskets to everyone that helped us out at CHOP and the PRMH, thanks to the help of our wonderful friend Stacy.
On Fri., April 24th, we were back down at CHOP to see Isaiah's cardiologist, urologist, ortho/plastics doctor, and have an echocardiogram done. He now weighs 9 lbs. 2 oz. and is 22 1/2 inches long. All of the doctors were happy with Isaiah's progress. The cardiologist will see him again at 8 months of age to continue monitoring the hole in his heart (the patent foramen ovale/PFO). The doctor is not concerned with Isaiah's heart, and feels the PFO will eventually close on its own. The urologist will still have to perform surgery to bring down his testes, but otherwise everything is functioning ok. The ortho/plastics doctor was very happy with the progress of his left arm. He was actually surprised how effective the splinting was working. We will continue splinting his left arm until surgery at 6 months. The urologist and plastics doctors will coordinate surgeries to cut down on how many times Isaiah has to undergo anesthesia. At 1 year of age, Isaiah's right hand will be operated on. Hopefully, that will be the extent of his surgeries. Thanks to my wonderful friend Rochelle S. for keeping me company on a very busy day.
We continue to be amazed by the outpouring of generosity from our friends, family, neighbors and church family. We could not go through this without all of you behind us. Ecclesiastes 4:9-12, "Two are better than one...for if they fall, the other will pick him up." Many times it was your faith and trust in God that gave us the strength to go on. God gave us our miracle son because of many of you. Thank you from the bottom of our hearts.
By the way, you are all welcome to call, email, or visit our little miracle man. We are still requesting that if you are sick or if someone in your home is sick to hold off until you are all better. Also, we are still not accepting stuffed animals because of all the dust and microbes they carry. Sorry about the delay in inviting you to come. It's just been a little crazy around here. We look forward to having you meet our amazing little boy. Thanks for your patience! God bless!
Tuesday, April 14, 2009
Some more pictures
| Hope everyone had a great Easter. 1 Peter 1:3 Praise be to the God and Father of our Lord Jesus Christ! In his great mercy he has given us new birth into a living hope through the resurrection of Jesus Christ from the dead... Thank you to everyone that offered to help Joy with her trips to CHOP in Philadelphia. We received many offers and appreciate each and every one. Thank you to our friends Stacy and Rochelle for taking time out of their day to go with Joy for these two visits. And now for some pics.... (Left to right, top to bottom) 1. The thinker... 2. Josiah playing with stickers 3. Josiah sharing his stickers. 4. Brothers playing. 5. He wasn't happy but he sure was cute! 6. Our attempt at Easter pics. 7. There's that smile 8. Check out my Easter outfit. 9. Our Family | |
 |  |
 |  |
 |  |
 |  |
 | |
Saturday, April 4, 2009
We're back online...
Sorry for not getting out an update sooner. Our power cord to our laptop died and the new one just came in the mail. Chris has been extremely busy at work and he didn't have the chance to send one out from there either.
FYI...If you recieved an ealier email stating "Eeyore is cute..." we were not the ones that sent that out. That email had a number in the subject instead of a title. Our updates will always have a title. This is one thing you can look out for when reading our updates. Please do not reply to those emails. Sorry about this. We're not entirely sure how this happened yet or if it will happen again.
So where to begin....
On Wednesday, Isaiah went to his local pediatrician. He now weighs 8 lbs. and is 21 inches long. He's gaining weight very well and the doctor said we don't have to go back until his 2 month checkup. It's only 2 weeks away but at least we get a 1 week break from this office visit.
On Thursday, Joy went down to CHOP by herself to see Dr. Joy Collins, general surgeon. She was the doctor who performed Isaiah's intestinal bypass. She was so pleased with his progress that she signed off on his case (1 doctor down, 6 to go). After this visit, Joy had to go to the CHOP office in Chalfont so that Isaiah could have his splint adjusted for his left arm. Surgery for either arm is not yet scheuled, and probably won't be till at least 6 months to a year from now.
Isaiah's next appointment is April 15th for a visit with the GI doctor, Dr. Haber. She is following him to make sure he does not develop biliary atresia. Then, on the 24th, Isaiah sees his cardiologist, urologist, ortho/plastics, and will have an echocardiogram done. Joy is looking for someone to accompany her on both of these visits. On the 15th, she has 3 thank you baskets to deliver and needs help carrying them.
When all of this started and we thought Isaiah had Trisomy 18, we were only hoping for 2 months with him. Well, God has been good and not only gave us the health of our precious miracle, but He has been giving us more than 2 months with Isaiah. ("Isaiah 58:8 Then your light will break forth like the dawn, and your healing will quickly appear; then your righteousness will go before you, and the glory of the LORD will be your rear guard.") We could not be more grateful. Every day is a gift. We all love being with him. Every day Josiah asks to hold Isaiah and loves to give kisses to him or play with his hair. It is wonderful to watch. We look forward to the day when the 2 of them are running around and playing together.
We want to continue to thank you all for your continued support and prayers. We honestly do not know where we'd be if we didn't have God in our lives. We remember talking with some families at the Ronald McDonald house and to hear their stories and know that they didn't know God and have that personal relationship with Him was saddening. We ask that you also continue to pray for the children we listed on one of the previous blog entries. We know that two of them, Tehila and MacKynlee, have left the hospital and are now home with their parents.
Here is a small video of Josiah playing with Isaiah. Enjoy.
FYI...If you recieved an ealier email stating "Eeyore is cute..." we were not the ones that sent that out. That email had a number in the subject instead of a title. Our updates will always have a title. This is one thing you can look out for when reading our updates. Please do not reply to those emails. Sorry about this. We're not entirely sure how this happened yet or if it will happen again.
So where to begin....
On Wednesday, Isaiah went to his local pediatrician. He now weighs 8 lbs. and is 21 inches long. He's gaining weight very well and the doctor said we don't have to go back until his 2 month checkup. It's only 2 weeks away but at least we get a 1 week break from this office visit.
On Thursday, Joy went down to CHOP by herself to see Dr. Joy Collins, general surgeon. She was the doctor who performed Isaiah's intestinal bypass. She was so pleased with his progress that she signed off on his case (1 doctor down, 6 to go). After this visit, Joy had to go to the CHOP office in Chalfont so that Isaiah could have his splint adjusted for his left arm. Surgery for either arm is not yet scheuled, and probably won't be till at least 6 months to a year from now.
Isaiah's next appointment is April 15th for a visit with the GI doctor, Dr. Haber. She is following him to make sure he does not develop biliary atresia. Then, on the 24th, Isaiah sees his cardiologist, urologist, ortho/plastics, and will have an echocardiogram done. Joy is looking for someone to accompany her on both of these visits. On the 15th, she has 3 thank you baskets to deliver and needs help carrying them.
When all of this started and we thought Isaiah had Trisomy 18, we were only hoping for 2 months with him. Well, God has been good and not only gave us the health of our precious miracle, but He has been giving us more than 2 months with Isaiah. ("Isaiah 58:8 Then your light will break forth like the dawn, and your healing will quickly appear; then your righteousness will go before you, and the glory of the LORD will be your rear guard.") We could not be more grateful. Every day is a gift. We all love being with him. Every day Josiah asks to hold Isaiah and loves to give kisses to him or play with his hair. It is wonderful to watch. We look forward to the day when the 2 of them are running around and playing together.
We want to continue to thank you all for your continued support and prayers. We honestly do not know where we'd be if we didn't have God in our lives. We remember talking with some families at the Ronald McDonald house and to hear their stories and know that they didn't know God and have that personal relationship with Him was saddening. We ask that you also continue to pray for the children we listed on one of the previous blog entries. We know that two of them, Tehila and MacKynlee, have left the hospital and are now home with their parents.
Here is a small video of Josiah playing with Isaiah. Enjoy.
Subscribe to:
Posts (Atom)
