Isaiah has been down at CHOP now since Sat. night. He has seen alot of doctors and has had quite a few tests done. Here's the run-down. I am going to use some medical terms, so if you have questions, please consult the internet. My brain is just too tired to explain everything---sorry!
Isaiah's fontanelles are still very open, which could be related to a nutrition deficiency, not sure. Neurology will further investigate. Scoliosis of the spine was ruled out, but mild left hip dysplasia was diagnosed. He will need a special brace designed for his hips, but it will be done as an out-patient procedure at a later date. His femoral heads have not ossified, and I'm not sure how this will affect him in the long run, but again the docs think it's related to malnutrition. Isaiah will be seen by multiple orthopaedic surgeons/doctors to deal with the weakness in his spine, both of his upper extemeties, his hips and femurs.
Today, I had to place a Naso-gastric tube down for feedings. Isaiah is still not taking in enough food or fluids to sustain him, and he still has periodic vomiting episodes and diarrhea that the docs can't figure out. There is a possibility for surgery later to help correct the reflux problem, but not until he is stong enough. He is very weak and listless. It's hard to watch. He stays awake for about 45min-1hr. and then is back to sleep for several hours. He has significant muscle wasting and is just so skinny. Sometimes, I feel like I'm going to break him when I pick him up. Please continue to pray for him and for us!
Chris went back to work today, and hopefully Josiah can come down to visit this weekend. We are very thankful for the Ronald McDonald House. We met 2 little girls we would like for you to pray for: Taylor P. and Rowan. Their families would appreciate it. Thank you for your continued love and support!