Wednesday, January 20, 2010


Isaiah has been down at CHOP now since Sat. night. He has seen alot of doctors and has had quite a few tests done. Here's the run-down. I am going to use some medical terms, so if you have questions, please consult the internet. My brain is just too tired to explain everything---sorry!

Isaiah's fontanelles are still very open, which could be related to a nutrition deficiency, not sure. Neurology will further investigate. Scoliosis of the spine was ruled out, but mild left hip dysplasia was diagnosed. He will need a special brace designed for his hips, but it will be done as an out-patient procedure at a later date. His femoral heads have not ossified, and I'm not sure how this will affect him in the long run, but again the docs think it's related to malnutrition. Isaiah will be seen by multiple orthopaedic surgeons/doctors to deal with the weakness in his spine, both of his upper extemeties, his hips and femurs.

Today, I had to place a Naso-gastric tube down for feedings. Isaiah is still not taking in enough food or fluids to sustain him, and he still has periodic vomiting episodes and diarrhea that the docs can't figure out. There is a possibility for surgery later to help correct the reflux problem, but not until he is stong enough. He is very weak and listless. It's hard to watch. He stays awake for about 45min-1hr. and then is back to sleep for several hours. He has significant muscle wasting and is just so skinny. Sometimes, I feel like I'm going to break him when I pick him up. Please continue to pray for him and for us!

Chris went back to work today, and hopefully Josiah can come down to visit this weekend. We are very thankful for the Ronald McDonald House. We met 2 little girls we would like for you to pray for: Taylor P. and Rowan. Their families would appreciate it. Thank you for your continued love and support!


  1. Joy, just wanted to let you know that you, your son and the rest of your family are in my prayers on a daily basis. It doesn't seem so long ago that my parents and family were making countless trips to CHOP. So thankful that there is a hospital like that w/ such talented doctors. As for the Ronald McDonald House...cannot say enough about how vital that place is and the support you find there in people who understand. Thank you for all the updates...even though I haven't seen you in years it has made me closer to the Lord in bringing your needs to Him. I pray that you find strength and hope deep in the wells of Great Physician. Praying continually...

  2. Joy, Tia and I have been praying for Isaiah and your family. We know who we serve and believe that he can do anything but fail. We are so thankful for the Ronald McDonald House. Although we all have different reasons for being there, it is comforting to know that we are not alone and that every positive report from the doctors is a testimony that God is still in control..

    God Bless