Things happened quite quickly after Isaiah was able to poo Sunday night and tolerate his feeds. We actually were able to come home Tuesday evening. Isaiah has been doing really well since the surgery. The first 4-5 days were really rough with Isaiah having to be medicated around the clock for pretty intense pain. Since then, his pain has been controlled with occasional Tylenol. He has had a few episodes of retching, but has not thrown up since the corrective surgery. We have been able to talk him down from his retching episodes and he has been able to get himself under control. So far, the results have been encouraging. Isaiah's usual response to pain or discomfort has been to vomit. Now that he can't, he has to learn a new way to cope with pain and work through it.
Isaiah's 3rd birthday was Monday, the 20th. Can't believe he is already 3. Seems like yesterday we were celebrating his 1st birthday with all of you. The staff at CHOP made a huge birthday sign for his door, ordered him an ice cream cake, gave him a present, and sang to him. It was a really fun day.
Josiah also celebrated his 5th birthday while we were down at CHOP on Feb. 15th. Time keeps on flying by!!!! What was really special was that the Ronald McDonald House put together a Batman birthday party for the boys on the evening Isaiah was discharged from the hospital. There were Batman banners, toys, plates/cups, gift bags, and so much more!!!! We even had one of our friends, Colleen, from a few visits back there with her son, KeVaughn. The boys also had the privilege of being sung to by a group of girls from Mount St. Joseph's school. Isaiah especially liked being the center of attention from all the girls!!! He's such a flirt!
Thank you for all your continued prayer and support. We still have a long road ahead of us, but so far, so good. Once Isaiah is cleared by surgery (next appointment March 15th), he is heading to an inpatient feeding clinic at Good Shepherd, Bethlehem. Isaiah will be staying at the clinic for 4-8 weeks for intense therapy to re-learn how to eat, swallow, process food. Please pray as we will be separated from Isaiah during that time. We will be able to visit and stay when we can, but we both work and can't stay full time. If any of you are willing, we are looking for people who would like to stay overnight with Isaiah the nights we cannot stay with him at Good Shepherd. We really don't want him to be alone. He has had to be alone alot lately. Thank you again for everything.