This is just a quick update on what happened down at CHOP on Tues. My Aunt Liz and I met with the neonatal surgeon, the social worker, the genetic counselor, the nursing surgical coordinator, the lactation consultant, and one of the midwives. It was a very busy day. The surgeon, Dr. Leichty, will be part of a surgical team that will be assessing Isaiah when he is born. He feels Isaiah probably will need some type of surgery early on. They will obtain blood work, X-rays and an ultrasound shortly after he is born to determine if his stomach/bowel issue are critical enough to perform surgery right away, or to see if they can wait. We won’t know until Isaiah is born whether or not he can eat. They will probably use a naso-gastric tube that goes from his nose into the stomach to decompress the stomach until he is stabilized. They will also probably use IV nutrition for awhile.
Shortly after his birth they will also assess his brain growth and development. He may need intervention for his hydrocephaly, but right now the doctors plan to just monitor him. They will also assess his liver. If it is functioning ok, no surgery will be needed at this time.
Unfortunately, the results of the amniocentesis have not been conclusive, and the final results are not in yet. As of right now, the doctors have absolutely no idea what Isaiah has. They basically said, we will have to wait until he is born for them to determine what he has and their plan of treatment. Dr. Zackai, the geneticist/morphologist, will come see our son and give her best educated assessment for diagnosis and treatment. It is rather frustrating. Chris and I have absolutely no direction. Most of the time, we don’t even know how to feel. Isaiah may still live a very short life, but maybe he could live. We just don’t know.
Since Friday, Feb. 20th, is the day of my scheduled C-section, CHOP has given us specific guidelines for us and for any family/guests to follow. Please keep in mind that we are in a critical situation, and this is not a normal delivery. I am having major abdominal surgery (a C-section) and Isaiah will be rushed to the NICU. We know that there will be a lot of people who want to come and visit, call, or send gifts, and we deeply appreciate everyone’s generosity. But, we are asking that everyone be extra sensitive to our unique situation.
CHOP’s guidelines are as follows, per Marty Hudson, MSW,LSW:
1. No visitors on Friday until the doctors give us the ok to call a few people to come down. We are only allowed a short list of visitors. Whoever is on the list will be notified by us. Please don’t take it personally if you don’t get a chance to come down to CHOP.
2. No stuffed animals allowed.
3. No flowers allowed.
4. No balloons allowed.
5. Absolutely no sick people allowed. If you or your children have any type of cold, big or small, you will not be allowed to see Isaiah. Please understand that Chris and I also do not want to be exposed. We have to protect Isaiah at any cost.
6. Please visit the blog for updates or call your contact people for information. We will update the blog and post pictures as soon as we are able to. Please do not call us at the hospital. We will have our computer, so we can receive emails.
The following individuals will be the point of contact for the Emr/Solt families and for our church family: David and Lori Emr. For the Miller/Novia families, Glenn and Viviane Miller will be your contact people. Please only call them if absolutely necessary. Otherwise, the blog will be updated as soon as we have information. The contact people will not have more or newer information that is not already on the blog. As the days progress at CHOP, they will have a better idea as to how to help or assist us.
Thank you again for all your prayers and support. We are constantly reminded of God's grace and provision in this difficult time. He has provided over and over again when we needed it most and in the most unexpected ways. God has stayed true to His promise that He "will never leave us or forsake us," Deuteronomy 31:8.