Saturday, February 21, 2009

Isaiah - 2 Days Old

Dear Family and Friends,

Just letting you know a quick update about Isaiah. All I'm about to tell you is all we know right now. We don't have answers to all your questions; we are still waiting on many tests and other doctors visits. We will probably know more on Monday when the rest of the staff is in.

From head-to-toe:
BRAIN: Isaiah still has hydrocephaly, but how severe it may be is still unknown. He may have brain damage/delay. He also missing the septum pellicudum between the 2 hemispheres of the brain, but he is responding to us and tracking us with his eyes.

HEART: On Monday, the cardiologist will reevaluate his heart to make sure it is functioning ok and that the defect did close up.

DIGESTIVE TRACK: Isaiah has been unable to eat. He is getting his nutrition via IVs, called TPN and Lipids. He has had a tube in his stomach to drain it for the past day. Today, the docs tried to clamp the tube to see if his body could digest and pass his stomach secretion. Unfortunately, Isaiah threw up. He is now going for another test. If this shows a blockage, he will have emergency surgery today.

LIVER: He is showing signs of biliary atresia with bile backing up into his stomach. Biliary atresia is a life threatening condition. The docs will test this on Mon.

KIDNEY: Right now his right kidney may be blocking his testes from descending. They are not in his scrotum, and the docs have not been able to locate them yet. But, both of his kidneys appear to be functioning. Also, the right kidney may be pulling on one of the adrenal glands.

MUSKULOSKELETAL: Both of his hands are missing thumbs. His L arm is severely deformed due to the missing radius, and the orthopedic docs plan on splinting it to try to make it straighter by moving the hand back onto the ulna. After they do this, Isaiah will have to be down here every week for evaluation just for his bones alone. He has extra ribs, and all his ribs are thinner than what they should be. Also, he has a floppy sternum, meaning the ribs are not firmly attached to the sternum via cartiledge. His chest is somewhat concave.

His lab work is normal and he does not appear to be uncomfortable. Just pray because we have so many unanswered questions and we are really struggling. We still don't know what his outcome will be. We ask that if you have any questions about the terminology in this letter, to please look it up. We just don't have the time to explain everything.

Today in my devotions, (I've been reading Jabez's prayer-I Chronicles 4:9-10) God calls Isaiah, saying, "Whom shall I send, and who will go for Us?" Isaiah answers, "Here am I Lord, send me." Isaiah 6:8 Pray that we will be willing to send him to wherever God calls him.
Thank you again for your continued prayers and support.


  1. Wow guys. That is alot for you to understand and work thru, not to mention make decisions for your new little man. Praying for you to have wisdom and be encouraged & for Isaiah to be comfortable and peaceful.

  2. I love you guys so much and am praying constantly for you. I am here for you whenever you need me.



  3. Now may the God of peace-
    who brought up from the dead our Lord Jesus,
    the great Shepherd of the sheep,
    And ratified an eternal covenant with his blood-
    may he equip you with all you need
    for doing his will.
    May he produce in you,
    through the power of Jesus Christ,
    every good thing that is pleasing to him.
    All glory to him forever and ever! Amen
    Hebrews 13: 20-21

    A verse of encouragement to go with the above comment.

    Angie (Stephens) Nelson

  4. we will continue to pray for Isaiah and for his mommy and daddy. Thankfully, we have a great God who holds us in his arms and loves us more than we can ever imagine. Be strong in the Lord and in the power of His might.

    Marianne (Palmer) Ayers

  5. We will pray for baby Isaiah and that God will be close and near to you both as parents. Remember, God gives the wisdom and strength even during the times that seem impossible. I passed this matter of prayer to my parents as well, being semi-retired missionaries, they welcome the chance to uplift prayers to call on the power God through Jesus Christ.
    David and Kathy Cowser

  6. What more can I say than you are in our prayers. As a new mom myself, my heart breaks to hear of all the physical imperfections within little Isaiah. However, I know that in God's eyes (and I hope in yours), he is the most precious and perfect little boy. Always remember that one day, we will ALL be made perfect. Praying that our Lord continues to grant you wisdom, peace and healing!

  7. Praying for your family.

  8. Will be praying for both of you and wisdom for the doctors as they treat little Isaiah. We know that God is in control.

    Ellie Steppey

  9. We have committed to pray for sweet little Isaiah throughout your pregnancy and will continue to do so. We are praying for wisdom, peace, strength, and endurance. God is right beside you at the happiest and saddest times. He will comfort you and hold you up.

  10. Isaiah, We rejoice for each moment you are here with us and can't help but beg God...for not just moments but for years! You are so precious and have an amazing mommy and daddy. You have taught us how to pray...and as hard as it is to pray..."not my will but thine Lord", we also let our request be made known! We thank God for your little life and His work through you! All our love and prayers...Carlos and Katrina Gonzales

  11. Gods ways are not our ways, but He He will make all things come out for good for those who love Him. Always believe in Him and trust Him in His wisdom, I am praying for little Isiah that God may bless him, and you his parents, through all that you have to bear - may His will be done in your lives ... keep up the good fight - keep Jesus at your side, may His strength be your strength .. with love in Christ, Carole (of Curacao)

  12. Dear Chris and Joy,
    You do not know me, but I am Robin Peachey's sister, who has become a friend of your brother, Doug. Robin forwarded me the email from Doug about little Isaiah. I am in tears now, crying out to God to save your precious, little miracle...that he would be made whole and be a witness to God's awesome grace, mercy and compassion. We have an incredible God, and He can and will do amazing things in His time. May you feel the love that only God can give you during this time. I pray that He will surround you with family and friends who will lift you up during this time. I pray for strength for both of you and provision during this stressful time and that God would pour out his blessings on your household. Whatever the future holds, hold on to the strength and love that only God can give...
    Love and Many Prayers, Tamara (Peachey) McCool

  13. Zaiah - in russian it means little bunny. it's cute and fits his little brother perfectly.