Dear Family and Friends,
Just letting you know a quick update about Isaiah. All I'm about to tell you is all we know right now. We don't have answers to all your questions; we are still waiting on many tests and other doctors visits. We will probably know more on Monday when the rest of the staff is in.
BRAIN: Isaiah still has hydrocephaly, but how severe it may be is still unknown. He may have brain damage/delay. He also missing the septum pellicudum between the 2 hemispheres of the brain, but he is responding to us and tracking us with his eyes.
HEART: On Monday, the cardiologist will reevaluate his heart to make sure it is functioning ok and that the defect did close up.
DIGESTIVE TRACK: Isaiah has been unable to eat. He is getting his nutrition via IVs, called TPN and Lipids. He has had a tube in his stomach to drain it for the past day. Today, the docs tried to clamp the tube to see if his body could digest and pass his stomach secretion. Unfortunately, Isaiah threw up. He is now going for another test. If this shows a blockage, he will have emergency surgery today.
LIVER: He is showing signs of biliary atresia with bile backing up into his stomach. Biliary atresia is a life threatening condition. The docs will test this on Mon.
KIDNEY: Right now his right kidney may be blocking his testes from descending. They are not in his scrotum, and the docs have not been able to locate them yet. But, both of his kidneys appear to be functioning. Also, the right kidney may be pulling on one of the adrenal glands.
MUSKULOSKELETAL: Both of his hands are missing thumbs. His L arm is severely deformed due to the missing radius, and the orthopedic docs plan on splinting it to try to make it straighter by moving the hand back onto the ulna. After they do this, Isaiah will have to be down here every week for evaluation just for his bones alone. He has extra ribs, and all his ribs are thinner than what they should be. Also, he has a floppy sternum, meaning the ribs are not firmly attached to the sternum via cartiledge. His chest is somewhat concave.
His lab work is normal and he does not appear to be uncomfortable. Just pray because we have so many unanswered questions and we are really struggling. We still don't know what his outcome will be. We ask that if you have any questions about the terminology in this letter, to please look it up. We just don't have the time to explain everything.
Today in my devotions, (I've been reading Jabez's prayer-I Chronicles 4:9-10) God calls Isaiah, saying, "Whom shall I send, and who will go for Us?" Isaiah answers, "Here am I Lord, send me." Isaiah 6:8 Pray that we will be willing to send him to wherever God calls him.
Thank you again for your continued prayers and support.